On March 25, #MEAction hosted a telepresser featuring a panel of experts uniquely positioned to speak to how long COVID is being informed by the research on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). Long haulers are overwhelmingly reporting symptoms that resemble ME/CFS at six months, and researchers are expecting the number of people withContinue reading “CfS for ME/CFS Drs. Komaroff and Bateman participate in MEAction Presser”
We are excited to announce the launch of the ME/CFS Collaborative Research Center’s outreach and engagement initiative led by the Center for Solutions for ME/CFS at Columbia University. The cornerstone of this effort is the establishment of a Community Advisory Committee (CAC) to partner with the NIH Clinical Research Centers (CRCs) at Columbia University, CornellContinue reading “Bridging the Gap: Outreach and Engagement with the ME/CFS Community”
The following is a transcript of Dr. Lipkin’s talk at the CDC in September. You can watch the full lecture here: Transcript 21:19 This is actually how I got into this field, I was invited by Brian Mahy, who many of you will remember, and Jim Dobbins who some of you may remember, because ofContinue reading “A microbe hunter turns to ME/CFS: Ian Lipkin presents at the CDC”
The following is a summary of the trans-NIH ME/CFS working group call from March 17, 2020. For a transcript of the call please visit the NIH webpage here. Beginning the call, Joe Breen, PhD highlighted various updates from our Collaborating Research Centers (CRC) at JAX labs, Cornell University, and our data managing site, RTI. AlsoContinue reading “ME/CFS Advocacy Call Highlights”
March 17, 202011:00 a.m. – 12:00 p.m. ETDial-in: 800-619-8524Participant passcode: 4213862 For a summary of the call, click here.