The Coding Problem—Why no American can develop ME/CFS, including after COVID

Mary Dimmock Please sign this petition to fix the coding problem that makes Americans with ME/CFS invisible. If a tree falls in the forest, does it make a sound? And if an American develops ME/CFS, would the US disease tracking systems know about it? Philosophers may debate the first question but the answer to theContinue reading “The Coding Problem—Why no American can develop ME/CFS, including after COVID”

A letter from our Community Advisory Committee

Francis S. Collins, M.D., Ph.D. Director, National Institutes of Health (NIH) 9000 Rockville Pike Bethesda, Maryland 20892 Dear Dr. Collins, We are a Community Advisory Committee established with the support of the NIH to advise the ME/CFS Collaborative Research Center consortium. We are housed at the Center for Solutions for ME/CFS at Columbia University. OurContinue reading “A letter from our Community Advisory Committee”

Bridging the Gap: Outreach and Engagement with the ME/CFS Community

We are excited to announce the launch of the ME/CFS Collaborative Research Center’s outreach and engagement initiative led by the Center for Solutions for ME/CFS at Columbia University. The cornerstone of this effort is the establishment of a Community Advisory Committee (CAC) to partner with the NIH Clinical Research Centers (CRCs) at Columbia University, CornellContinue reading “Bridging the Gap: Outreach and Engagement with the ME/CFS Community”